The British Lung Foundation is a UK charity that offers support to people with COPD and their carers. They have a comprehensive website, and a wide range of publications. They also have telephone helpline and email enquiry service staffed by respiratory nurses and benefits advisers. Their ‘Breathe Easy’ support groups offer local support for people living with COPD and their carers.
If you are having difficulty with day to day activities, even with the help of your partner, family and friends, contact your local social services department and ask for an assessment. This can determine what practical support you and / or your partner may be eligible to receive and tell you about any statutory benefits you can apply for such as non-means tested attendance allowance.
Involvement of an occupational therapist in your assessment can identify any alterations to your home or equipment that would allow you to live there more comfortably and safely.
If you have difficulties with day-to-day tasks and personal care or need watching over to make sure you are all right, you may be eligible to claim a non means-tested benefit – Disability Living Allowance if you are under 65 or Attendance Allowance if you are aged 65 or over. You can find out about these and other benefits you may be entitled to claim by calling Age UK.
British Lung FoundationWebsite: www.lunguk.org helpline: 08458 50 50 20 (lo-call rate)British Lung Foundation is a UK charity working for everyone affected by lung disease.
DirectgovWebsite: www.direct.gov.ukThis website has useful information under the headings ‘money, tax and benefits’; caring for someone’ and travel and transport’.
NHS Choices website: Website: www.nhs.uk COPD can be found in the Health A-Z section. The pages contain information about diagnosis, treatment and support and includes a video interview with a patient who had COPD.
You can look at a separate section on the site for people living with COPD and find out more about support in your area and join the COPD blog. http://www.nhs.uk/Pathways/copd/Pages/Landing.aspx
NHS SmokefreeWebsite: http://smokefree.nhs.uk/Helpline: 0800 0224 332You will find information here on the help available if you’d like to give up smoking, no matter where you are on the journey - thinking about it, determined to stop or tried before and stopped but smoking again.
NICE guideline CG12 Management of COPD in adults in primary and secondary care. Website: www.nice.org.uk/Guidance/CG12Orderline: 0845 003 7783Look for a patient version of any Guidance document. You can find it under the heading – NICE guidance written for patients and carers. An updated version of this Guideline is due in June 2010.
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The Health A-Z section of this website contains information on the symptoms, diagnosis and treatment of many types of illnesses.
The National Institute for Health and Clinical Excellence (NICE) has produced guidance on the early assessment and treatment of NHS patients
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