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The British Lung Foundation is a UK charity that offers support to people with COPD and their carers. They have a comprehensive website, and a wide range of publications. They also have a telephone helpline and email enquiry service staffed by respiratory nurses and benefits advisers. Their ‘Breathe Easy’ support groups offer local support for people living with COPD and their carers.
If you are having difficulty with day to day activities, even with the help of your partner, family and friends, contact your local social services department and ask for an assessment. This can determine what practical support you and / or your partner may be eligible to receive and tell you about any benefits you can apply for such as non-means tested attendance allowance.
Involvement of an occupational therapist in your assessment can identify any alterations to your home or equipment that would allow you to live there more comfortably and safely.
You can fin dout about asking Social Services for an assessment and the help you can get if you are found eligible for support in the Age UK Guides Care at home, Adapting your home, and Personal budgets in social care.
If you have difficulties with day-to-day tasks and personal care or need watching over to make sure you are all right, you may be eligible to claim a non means-tested benefit – Personal Independence Payment if you are under 65 or Attendance Allowance if you are aged 65 or over. You can find out about these and other benefits you may be entitled to claim by calling Age UK. Or read our More money in your pocket guide.
British Lung FoundationWebsite: www.lunguk.org helpline: 03000 030 555British Lung Foundation is a UK charity working for everyone affected by lung disease.
Gov.ukWebsite: www.gov.ukThis website has useful information under the headings ‘benefits', 'disabled people’ and 'driving and transport’.
NHS Choices website: Website: www.nhs.uk COPD can be found in the Health A-Z section.
The COPD pages include a COPD forum for people living with COPD.
NHS SmokefreeWebsite: www.nhs/smokefreeHelpline: 0300 123 1044
You will find information here on the help available if you’d like to give up smoking, no matter where you are on the journey - thinking about it, determined to stop or tried before and stopped but smoking again.
NICE guideline CG101 Management of COPD in adults in primary and secondary care. Website: www.nice.org.uk/guidance/cg101/informationforpublic
This link takes you to the 'information for the public' version of the guidance.
NICE Quality Standard for COPDhttp://www.nice.org.uk/Guidance/QS10
The NICE quality standard describes what good quality care should look like for people with COPD. NHS staff commissioning and delivering care for people with COPD should be working towards reaching this standard.
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