Your caring role may change over time. The person’s condition may deteriorate and they may require more support than you have the time or energy to give.
If this happens, you should ask their local social services department to assess or reassess their care needs, and ask for a carer’s assessment for yourself. Both you and the person you look after may be entitled to extra support.
If it’s no longer possible for you to give the person the care they need, it might be best for both of you if they consider moving into a care home. However, make sure you have considered all the other housing options first.
You might feel guilty suggesting a move to a care home, but if the person’s needs are overwhelming you it is only sensible to find an alternative, more sustainable way for them to get the care they need.
When caring ends
There may also come a time when your caring role comes to an end, either because the person you were caring for has moved into a care home or because they have died.
This could be an emotional time, and you may experience feelings of guilt, grief, emptiness or loneliness, as well as relief at getting your life back.
If someone close to you dies and you were their carer, losing them could have an especially big impact on you and there may be many adjustments to make. Read about coping with bereavement.
Your finances when caring ends
There might also be a financial impact. If the person goes into a care home, they will stop getting disability benefits after 28 days, and you will stop getting Carer’s Allowance.
If you are receiving any Carer Premium on your other benefits, this will continue for an extra eight weeks after your Carer’s Allowance stops.
If the person you cared for has died, you will continue to get Carer’s Allowance for up to eight weeks after their death. It might be a good time to have a benefits check as your entitlement to other benefits may change.