If you wish to discuss your symptoms and concerns before visiting your GP, while awaiting the results of any investigations or if you are recently diagnosed with dementia you may wish to contact one of the dementia charities - Dementia UK, Alzheimer’s Research UK, or the Alzheimer’s Society. Their contact details are in the ‘Further information’ section. They may be able to answer your questions about medication available and offer information or advice to support you if you are living with or caring for someone with dementia.
The Alzheimer’s Society has over 240 local groups who can offer practical and emotional support and signpost to local services.
Social care, practical and emotional support
The nature of dementia means your condition will change over time. It is important that the health professional responsible for your care tells you about the range of local services that can help you and family members who care for you as your needs change.
This includes social services should you need help with personal care and day-to-day activities and voluntary groups that can provide both practical and emotional support to you and your family.
Caring is a very demanding job. So if you care for someone with dementia you can ask social services for an assessment to identify your need for support. You may be eligible for regular respite or longer respite breaks.
Download our free guide Caring for someone with dementia
You can find more about help available through social services by calling our Advice Line on 0800 169 65 65.
If you have difficulty managing personal care or day-to-day tasks or need watching over to make sure you are all right, you may be able to claim a non means-tested benefit – Personal Independence Payment (PIP) if you are under 65 years old or Attendance Allowance if you are aged 65 and over. You can find out more about these and other benefits you may be entitled to by calling Age UK on 0800 169 6565.
Powers of Attorney and having an up-to-date will
Planning ahead can give you peace of mind. It can ensure that your wishes are known should there be a time in the future when your symptoms mean you are no longer able to make decisions about your financial affairs or about medical treatment. You can draw up, while you still have capacity to do so, separate Lasting Powers of Attorney – one to cover financial decisions and one to cover health and welfare decisions. This involves appointing someone you trust to act on your behalf should you no longer have the capacity to make decisions yourself.
Making a will or ensuring your will is up to date means those you care about are provided for as you would wish.
Alzheimer’s Research UK
Alzheimer’s Research UK is the UKs leading dementia research charity. It offers information and advice through its resources and Infoline. It can help connect you with research projects if you want to get involved in research.
The Alzheimer's Society
The Alzheimer's Society offers information, advice and support for people with dementia and their families through its resources and local groups.
An online and telephone service providing information advice and support for carers.
Carers Trust has a UK wide network of 144 local carers centres providing information, advice and support to carers. Crossroad care schemes are a network of 76 local independent charities providing support to carers and the people they care for, often through the provision care in the home to allow the care to have break.
Carers UK offers information and support to carers and campaigns for better help for those who take on a caring role.
Dementia UK is a national charity committed to improving the life of all people affected by dementia. Their helpline is staffed by Admiral Nurses - specialist mental health nurses who work within the NHS and are supported by Dementia UK. Admiral Nurses only work in some parts of the country. Uniting Carers is their national network of family carers who want to share their experience of caring for someone with dementia to make a difference.
Join dementia research
The National Institute of Health Research in partnership with Alzheimer Scotland, Alzheimer’s Research UK and Alzheimer’s Society have developed 'Join dementia research', a new service which allows people to register their interest in participating in dementia research and be matched to suitable studies. It invites people who have a dementia diagnosis and those who do not have any memory problems to register. Visit the website for more information.
NHS Choices website:
Alzheimer’s disease and Dementia are listed separately in the Health A-Z section