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Dementia – Frequently Asked Questions

 

I am worried about my friend, he is deteriorating rapidly and seems more confused & agitated. What should I do? They don’t appear to have a formal dementia diagnosis?

  •   If the change is sudden please make an appointment with their GP. The appointment should be prioritised

  •   A telephone appointment to provide the GP with more information is a good starting point, but if they require one, please ask for a face to face appointment

  •   If it’s out of hours or the weekend, the advice is then go to NHS 111
    If I cannot get through to my GP – what should I do? Call NHS 111 or visit 111.nhs.uk

 

My Mum was diagnosed with dementia a long time ago and we were given leaflets and information at the time. She seems to be getting worse and it’s been a long time since we last saw her GP, what should I do?

Sudden Change

  •   If the change is sudden please make an appointment with their GP. The appointment

    should be prioritised

  •   A telephone appointment to provide the GP with more information is a good starting

    point, but if they require one, please ask for a face to face appointment

  •   If it’s out of hours or the weekend, the advice is then go to NHS 111

    If I cannot get through to my GP – what should I do? Call NHS 111 or visit 111.nhs.uk

    Progressive Change

  •   Symptoms of dementia do unfortunately become worse over time

  •   Please speak to your Dementia Care Advisor who will be able to take a look at what your

    parent and advise the changes in their needs

  •   If you do not wish to use the Dementia Care Advisor or there is an evident need for a

    change in personal care, you can refer them (or they can refer themselves) into the Adult Social Care team at your Local Authority. They can conduct a New Care Assessment Plan

 

The doctor told me that I had been referred to the memory clinic but I haven’t heard from them - who do I contact?

  •   Please check the letter you received from the Memory Clinic, this should outline their expected waiting time. If you have not received a letter please do call the memory clinic for an update

  •   If the Memory Clinic haven’t received your referral, please follow up with a calling to your GP

 

I am a carer for my husband who has a diagnosis of dementia and I am really struggling, I need a break. How do I access care?

  •   Please telephone the Carers UK support line on 0808 808 7777 or navigate to www.carerstrust.org.uk for more information

  •   You can refer yourself to the Social Care Team at your Local Authority for a carers assessment (you are entitled to this under the Care Act) and that may result in additional support

  •   If there is a need for a change to the personal care for your husband then please refer him to the same Social Care Team at the Local Authority for a New Care Assessment

  •   Please make sure the level of urgency is made clear to the Local Authority

 

The Department of Work and Pensions can’t come and visit me at home due to the current restrictions, how do I get my benefits assessed?

How do I get a Capacity Assessment or arrange a Power Of Attorney during the current restrictions?

How will I access Occupational Therapy, Speech & Language Therapy, or Cognitive Stimulation Therapy and when will they be back up and running?

  •   Please continue to work with the Department of Work and Pensions as your claim will be backdated to when you first applied

  •   You can also contact your local Citizens Advice Bureau for more general information, Age UK Berkshire Information and Advice Service. Use the Turn2Us benefit assessment tool online https://benefits-calculator.turn2us.org.uk/AboutYou

  •   Please call The Alzheimer’s Society national helpline on 0333 150 3456. They will be able to advise you further

  •   Fact sheets are available from both Age UK Berkshire and The Alzheimer’s Society if you would like more information

  •   Occupational Therapy & Speech and Language Therapy – Please go to your GP who will know who to refer too for help. They will also be able to provide a timeframe

  •   Cognitive Stimulation Therapy – Please go back to the Memory Clinic for information on how to book

 

Where does my Mum go when there is no one to care for them and I live abroad?

  •   If your Mum needs a change to her current personal care then we would advise her to refer herself (or you can refer her) into the Local Authority Adult Social Care team for a New Care Act Assessment. Please make sure the level of urgency is made clear to the Local Authority

  •   Please also speak with your Local Dementia Care Adviser if she has already received a diagnosis of dementia.

 

What services or groups are still running in my area?

  •   Please check your Local Council Directories. Please speak with the organisation listed as running the activity and check whether it is still running due to the latest COVID advice.

  •   Alternatively, you could use the Alzheimer’s Society’s Dementia Directory: www.alzheimers.org.uk/find-support-near-you

 

Useful Telephone Numbers

 

Age UK Berkshire - 0118 959 4242


The Alzheimer’s Society - 0333 150 3456


Younger People with Dementia (YPWD) Citizens Advice Bureau Advice Line - 0118 207 2880

Carers UK Support Line - 0800 144 8848

 

 

West Berkshire


Adult Social Care - 0808 808 7777

Memory Clinic - 01635 292070

 

Reading

Adult Social Care - 01635 503050

Memory Clinic - 0118 960 5959

 

Wokingham

Memory Clinic - 0118 949 5000

Adult Social Care - 0300 365 1234